Two years ago, at age 5, our son Finley was diagnosed with a craniopharyngioma, a non-malignant brain tumour. The tumour was creating pressure in Finley’s head, which caused severe headaches, lethargy and hormone disruptions. As this tumour is considered rare, there is no standard treatment for it and approaches vary.
Finley had three brain surgeries in the five months following his diagnosis. He developed several complications from these surgeries, including meningitis and two strokes. For a time, he was unable to move one leg and one arm and lost a lot of his vocabulary. In addition to the surgeries, Finley had countless scans, tests and many, many needles. The needles are the worst for Finley, regardless of how quick or gentle the nurses are.Read More